Finding help

Parkinson's FAQs is designed by people with Parkinson's for people with Parkinson's and their families. Information is not based on medical opinion alone, but also on the real-life experiences of people who live with Parkinson’s on a daily basis. This should help you understand your options, find out who can help you, how and when they can help, and then make choices that are right for you.

Remember, if you don't ask the right questions, then the healthcare professional cannot give you the right answers to improve your quality of life.

When you come across anything that you think is relevant to you or you feel that you want to ask further questions, print these pages out (or ask family or friends to do for you) to take to your next doctor’s appointment so that you can discuss together.

There are a number of national and international Parkinson’s organisations that can help you.

Many people also find that joining a support group can be really helpful. They offer the opportunity to meet other people with Parkinson’s in your area, to share experiences and take part in enjoyable activities. Your doctor will be able to provide you with details of your nearest local support group. See also Support groups in our Communicating well section.

Details of European and international Parkinson's organisations can be found on this website:

• Our members
• Other Parkinson's organisations.

The multidisciplinary team

There are many different professionals who will be on hand to help you manage your Parkinson’s. You will see your family doctor mostly and possibly a doctor who has a special interest in Parkinson’s. They will help you by checking your symptoms, prescribing and adjusting your medication when necessary, and giving general advice on day-to-day living with Parkinson’s. They will do whatever they can in order to build a good relationship with you so that you will always feel comfortable to discuss any problems that you have whenever you see them.

Treatment for Parkinson’s is constantly improving and involves a wide range of different professionals who can assist you now and later on.

For example, a dietician can help you with hints and tips on eating the right foods to keep you healthy, whilst a pharmacist will be able to offer advice on taking your medication and physiotherapists will help you to stay active.

Don’t be afraid to discuss these services with your doctor, and ask for more details about them.

• General practitioner
• PD nurse specialist
• Speech and language therapist
• Neurologist
• Occupational therapist
• Dietician
• Elderly care physician
• Physiotherapist
• Chiropodist (podiatrist)
• Pharmacist
• Continence advisor
• Psychologist
• Sex therapist
• Social workers
• National Parkinson’s organisation.

See also Creating your healthcare team  and Appointments with your healthcare team.